A patient registry is a powerful tool, because it can provide meaningful benefits across a broad array of stakeholders, include patients, caregivers, physicians and researchers. Today we discuss 3 key benefits of Patient Registry Software, and its role in turning data into actionable information. A patient registry is an effective tool to monitor the progression of a disease, to understand the variations in treatment and to observe factors affecting prognosis.
While the purpose(s) of a patient registry may vary, they are commonly used to evaluate patient outcomes and are now used by medical researchers, pharmaceutical groups, rare disease organizations, and many others.
However, a patient registry is able to reach its potential only with a viable patient registry software solution, one that understands an organizations goals and can create a custom, purpose driven data collection process that is able to meet the goals for all stakeholders.
There are several key benefits of a patient registry software:
1. Patient Registry Software to Speed Up Medical Research
With the help of a clinical-focused registry, you are able to quickly build and review a large patient population for medical research purposes. Registry participants provide important details on variables like family history, smoking habits, environmental factors, etc., which serves as a great asset for patients and researchers. The right patient software solution can rapidly catalyze rapid clinical data collection from multiple sources and stakeholders.
Our flexible system is the perfect foundation for your medical research as it allows multiple centers to work simultaneously, ensuring the data is kept safe and separated with the help of the system’s HIPAA compliant security features. This enhances the speed and quality of the data collection process, and ensures actionable data is gathered and organized.
2. Improve Quality of Patient Care
Patient registries are able to quickly analyze large data sets of patients’ treatments, personal experiences and patient outcomes – serving to enhance disease and treatment outcomes for health systems all over the world. This clinical data can help track health and plan more effective patient care by providing comparative data for practice improvement. Registries are invaluable for tracking the effects of a new medical devices or drugs, producing valuable findings to help guide evolving treatment patterns to allow for concrete advancements based on evidence gathered in real world applications.
Surprisingly, many patient registries fail to realize their full potential and still rely on manual data collection. Keeping up with digital advancements, our software solution features a web-based data collection tool where multiple stakeholders can enter data simultaneously. With data collection from multiple sources, you are able to gather real time information faster that is able to predict and support improved healthcare services.
3. Patient Registry Software to Enhance Knowledge of Rare Diseases
Rare diseases are characterized as conditions that have a low prevalence (affecting 5 individuals per 10, 000). Patient registries can serve as an important foundation for relevant data collection regarding rare diseases to develop new therapies and interventions due to the difficulty and cost constraints involved with studying rare diseases. Effective patient registry software offers an efficient and cost-effective method to study and develop potential treatments for a systematic rare disease registry
Our patient registry software solution establishes an accessible database that securely collects valuable information from multiple centers to help identify the epidemiology trends in rare patient disease registry. This data and its analysis can serve as a critical tool to build a comprehensive foundation of knowledge for these heterogeneous diseases. Our software solution can be custom tailored for your specific purpose, in this case to collect enough patients and data to fully understand the epidemiology and natural history of the rare disease.
Schedule a Free Demo
It cannot be stressed enough that the effectiveness of a patient registry is directly dependent on the patient registry software. To excavate the benefits mentioned above, schedule a free demo with us to assess our flexible and purpose-driven data collection software solutions that intrinsically support and advance medical research and improved patient care.