Patient registries are one of the most effective tools for improving healthcare outcomes and improving disease understanding as long as the registry is designed for success. Professional medical facilities often use patient registries, also known as clinical registries for evaluating patient outcomes and devising the best treatment plans. Rare disease registries are also used, but they are condition specific. Whatever the purpose of a patient registry, it is undeniable that it is a viable tool for the improvement of the healthcare sector.
Why Build A Patient Registry Designed for Success?
While there are specific sub-targets for every registry, the basic aim is to transform real-world health data into real-world evidence. This evidence helps to improve outcomes for a specific segment of the population that is defined by a particular disease or condition.
If the registry is not building a solid and measurable ongoing data compendia, it is not fulfilling a primary goal or benefit of a successful registry. It is also meant to follow the health status of a patient after they receive treatment to record the patient outcome. What does this help to do? This important information then helps different medical stakeholders analyze and identify trends and patterns in treatment and the outcomes to decide which treatment plan, drug and practice worked out best.
Once they do that, they can save up on say, treatment B, which did not pan out to be that effective in restoring the patient’s condition. Hospitals can then focus on that treatment to relay patient care and pharmaceuticals can concentrate on the production of the more effective drug. Medical researchers can then narrow their research on this specific treatment to devise why it works out better. This helps save time, money and of course improve healthcare across the world.
Is your Registry Designed for Success?
While these are the makings of a successful patient registry, are you sure your registry is also designed for success? Here are a few performance metrics that will help you decide the success of your patient registry.
Level of engagement
Are those who have signed up for your registry finding it useful? Are patients also contributing and responding to your registry? The higher the level of engagement, the higher the registry’s chances of success.
Are there any impactful publications employing data-driven research from your patient registry? Is there a sufficient number of clinicians, researchers, etc. using your registry data as the base for registry based clinical trials?
Are you set up for quality based improvement?
Best Patient Registry Software Solution
For any patient registry to be successful, it needs to employ a flexible and reliable patient registry software. Without a solid base and interface, you cannot properly use the data you want to collect. If you want to set your registry up for success so it is used by major publications, make the right choice!