How Patient registries uncover off-label pharmaceutical therapies
Continuous data collection and analysis are required to advance healthcare. From patient-reported outcomes data to digitalized health records, the clinical…
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Cannabis Patient Registry Programs Uncover Clinical Understanding
The expansion of cannabis patient registry programs is beginning to expand our understanding of the potential benefits of cannabis. When…
3 Ways Rare Disease Patient Registries Are Used To Improve Outcomes
In the past decade, rare disease patient registry software has become an integral tool for health care professionals helping patients.…
Top 5 Mistakes of Setting up A Patient Registry
Setting up a patient registry successfully enhances the value of a health organizations ability to improve patient outcomes. The effectiveness…
Patient-reported Outcome Measurements (PROMs) in Patient Registry Programs
What is a patient-reported outcome measure? Patient-related outcome measures or PROMs are questionnaires that are completed by patients that seek…
Patient Registry Impact on Regulatory Decisions and Patient Outcomes
The application of patient registries in the United States by the Federal Drug Administration (FDA) and in the European Union…